What is everyday life like for someone with Rett Syndrome

The quality of everyday life for someone with Rett Syndrome depends on what stage the disorder is in. If somebody has Rett Syndrome in the early stages then life will be almost normal, they may have trouble speaking and they may not have complete control of their hands. If the person is in the middle stages of Rett Syndrome then they will have trouble focusing and will have trouble forming words. Their hands will be shaking while awake, but this will dissappear during sleep. Life will be almost normal in these stages. In the latter stages of Rett Syndrome the person will have trouble walking and will have almost no control of their hands. Attention and speech abilities will decrease greatly. At this point the person will not be able to form words or sentances.